What is your name? Mindaugas Tiščenka

How old are you? 36

Where are you from and where are you currently living? I am from Lithuania. Currently living in city Šiauliai

When your first symptoms started? And how much they progressed? First symptoms started at age 12-13, but probably some signs of disease was able to see even earlier. At that age I was very active, didn’t had any issues. Now at age 36 I need walker for short distances, like 100 meters and wheelchair for longer distances. At home I still don’t use anything, but always need to hold wall, or furniture when walking. Walking is biggest issue, hand are little weaker, overall I feel smaller, or bigger progression in most part of the body.

When were you diagnosed with VPS13D gene defect? In 2021. It took almost 20 years to find out what exactly I have.

Tells us something about your current activities in life (job, education, something else)? I work full time as sales manager in electronics manufacturing company.

How you fight with symptoms? I do exercise 3 times per day. Use Q10 and others food supleents.

What you would recommend for new VPS13D patients? Find good physiotherapist, take Q10 and always stay far from stress if it is possible. Join similar diseases groups. Together we are stronger to fight.

Do you have any MOTO in life which inspire you? A life goal you want to achieve?

Nothing is immposible.